We're still here... We had one doctor today tell us that Holland might go home tomorrow, and another tell us Tuesday. I'm guessing more like Tuesday...maybe Wednesday.
Holly has been able to go pretty much all day without oxygen, but needs just a whiff when she is sleeping. Interestingly, I asked one of the docs under what circumstances they would send her home with O2 at night. His response was "under no circumstances." So, if all she needs is a whiff of O2 at night for the next year, I guess we'll be living here.
Holland still has a bit of a cough, that gets worked up if she is very active or upset, but overall she is happy, energetic, and entertaining.
John and I traded off last night, and I stayed the night at home with Eden. After two terrible nasty sick days, she had a pretty good night, and was in a sweet mood for most of this morning. I brought her to the hospital to visit with her sis for a couple of hours, and that was really fun until they both started to melt down at the same time. Then Daddy had to whisk Eden away to take her home for another treatment and Tylenol. Now they are both sleeping.
Meanwhile, Daddy and I are both exhausted, physically and emotionally. We haven't slept in the same bed for 7 nights, and haven't had conversation that didn't revolve around our children's health in just as long. Our taxes aren't done and we don't know what to do about it... There are bills to be paid. The laundry and dishes and and basic maintenance of the house has piled up. I am supposed to go to work on Tuesday. I have kids to test, and IEP's waiting. Parents and teachers are getting frustrated because they have to keep changing meetings because of me and I feel bad. It's going to take a couple of weeks for us to get things sorted out, and to get our lives back to some semblance of normal.
But first, we have to get out of the hospital!!!
16 comments:
I wish we were RLF's and then I could come over and clean your house, do some laundry, finish your taxes and make you dinner:) Praying that you will bring Holly home soon.
They told us they wouldn't send us home on oxygen either.. but we put up a pretty good fight for it! Hope you guys get to come home soon!!
I've followed your blog for a while but never commented before. You mentioned in your last post you hadn't done your taxes and didn't know what to do. You can get an automatic 6-month extension on your deadline to file. However, if you expect to owe anything, that money is due on Tuesday. Here is a link:
http://www.irs.gov/formspubs/article/0,,id=98155,00.html
It's a very simple form, basically just names, socials and estimates of what you owe. Just mail it in along with payment (if any), postmarked by the 17th.
I hope you are all feeling better and home soon. By the way, the striped tights Eden has been wearing lately are the cutest things ever!
Oh Billie, I am so sorry you have so much to deal with right now. I am so glad to hear that Holland is feeling better, and I am really hoping you can bring her home on Tuesday.
Wishing I could say some majic words that would make all the problems go away - just know you are in my thoughts and prayers.
Kelly in Canada
Billie, You are all still in our thoughts and prayers. Hoping you come home today or tomorrow. Just like samylaine said "PUT UP A FIGHT" After you have been in the hospital for sooooo long then your just at risk of picking something else up and they just do soooo much better at home in their own environment. It is also easier to get the essentials done at home. I won't sugar coat the fact that when your in the hospital with your little one life gets out of whack. When we were in for half of the month in January it felt like it took me a month to get things back to the norm.It is so tough when you and your husband are like two ships passing and it can be tough to stay sane when your so drained. I even forgot to pay bills, But you know your little babe is more important than any bill, laundry, or cleaning. It will still be there when you have the time for it. Just work on getting home. I really hope your work understands too! MAKE SURE YOU EAT AND DRINK LOTS OF WATER. It will help.
Love Heather, Jeremy and Miss Marley
Okay, how beautiful is that look Eden is giving Holland? I just love the way she tilts her head when she is really focusing on something. I think she had the same look a few weeks ago in a photo when John was reading to the girls! So precious. Here it looks like she is saying, "Holly, is everything okay, I have been so worried about you"...PRECIOUS!! Sending love and many thoughts of Holly coming home soon. AK
I will continue to keep your family in my prayers. Hopefully you all will be healthy and happy real soon!
Steven
Sending you best wishes so you can go home soon. I hope you can get some sleep as well. It has to be a lot of work with two girls. I hope they are feeling better soon.
As for the taxes, you can file an extension but any tax that you owe is still due. If I recall (and it's been a while) I thought that if you paid 90% of last year's tax or 100% of this year's taxes then you didn't owe a penalty. The house can wait and as for work, you do the best you can. Sometimes, the IEPs have to wait. We had to post pone Dear Son's IEPs for quite a while last year and we have ours tomorrow.
Good luck.
I sure hope everybody is better soon.
I know all about stress...had to go to the chiroprator today because I couldn't move my neck due to the stress. Joy.
I'm praying for you.
Kendra
I had the same thought as several others - file for an extension on your taxes. I've had to do that several times. This year I finally finished just before dinner tonight.
I hope you all get home soon.
Thanks for all of your thoughtful suggestions on the taxes. I am happy to report that we were able to check that one off our list. My Aunt Barb works for H and R Block. I thought that we'd waited too long, and that she would be too busy, but it actually worked out for me to run over there today. She whipped out our return in no time, and I left feeling like at least one weight had lifted. I also learned a few things...
1. FSA and HSA are two different things.
2. You don't have to file an extension if THEY owe YOU money.
3. Never try to do your taxes yourself.
Mel,
Wow! I wish we were RLF too! :)
Billie
Oh, and a great big giant THANK YOU to my sister and her kids who came over and cleaned my house. They did a few loads of laundry (thanks Kim and Marion!), emptied and reloaded the diswhasher(thanks Mitchell!), and vacuumed (thanks Matt!).
Also THANK YOU to my mom and dad who kept my poor sick Eden today and took such good care of her so that John and I could spend a little time together...even if it was in the hospital.
Oh, and thank you to my boss and coworkers for being SO kind and understanding, and rallying to help me out with a few of my cases so I can return to work (hopefully next week) with a little less stress.
We're not going home tomorrow. I think it might be a stretch to say we'll be home by the weekend. Sigh.
what a great family you have :) but i guess we've always known that. hang in there. you are all in my thoughts. much much love.
lisa
Well, even though we are RLFs (the best there is) I sure wish we lived AWLC (A Whole Lot Closer) so I could clean, cook, pay bills, etc... for you and John. Wishing you well. Call if you want to chat my dear, I'm around and would love to give you an ear. Much Love, Jess
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