Pam and Namir first contacted me several years ago when their girls were very small. They live nearby and we have had a chance to meet in 'real life' several times now. Lessa and Ivy are 24-week triplets who lost their brother Galen at 11 days in January of 2006. Their brother Reid was born last October after a full-term uncomplicated pregnancy. He was unexpectedly diagnosed with Joubert syndrome after his birth and spent 105 days in the NICU.
Reid passed away suddenly yesterday after a complicated life. He was a lucky little boy to have spent his short life surrounded by so much love.
Please visit their blog to offer your sympathies, prayers, and kind words. I understand there is very little we can do to ease their pain, but at least we can let them know we care.

4 comments:
:) Thank you Billie, your comments touch our hearts!
Thank you Billie. You said "He was a lucky little boy to have spent his short life surrounded by so much love."
I feel comfortable saying that our lives, and by extension, Reid's, would not have been as rich or surrounded by love were it not for you & John's tales of how you bring love, support & advocacy into your girls' lives.
Thank you.
I stopped by to say Merry Christmas, and was saddened to read about this, will go now and leave condolences.
Sad to hear about your friends loss. I will go to their site.
Love you, Laura
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